Transformative Research Priorities for the Epilepsies

Collaborative Tech for Epilepsy Surgery, Devices and Therapies

Why would this research priority transform epilepsy research, our understanding of the epilepsies, and/or treatment of the epilepsies? :

We propose a bold initiative to share data, infrastructure, new technologies and methods across centers to tackle some of the major challenges in treating refractory epilepsy. There is a clear gap between recent advances in technology to treat refractory seizures and their clinical translation. This is largely because individual centers do not have a sufficient number of patients or technical know-how to do the statistically robust studies required to expedite discovery. For this reason, despite tremendous improvement in hardware, wearables, algorithms and implantable devices, progress in treating patients moves slowly. We propose to build tools and infrastructure, leveraging existing centralized and federated platforms, to allow (some examples):

1. Collaborators to aggregate and standardize data from patients implanted with intracranial electrodes and devices for research and trials. This includes imaging, metadata, electrophysiology and other supporting information.

2. Scientists to share and federate algorithms so that they can be run either centrally or on multiple sites and pool results

3. Centers to rapidly propose and execute retrospective and prospective clinical trials related to intracranial EEG, wearable and implantable devices, laser ablation, an innovations in hardware, software, algorithms and systems, both alone and in collaboration with industry.

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Idea No. 578

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